The miracle of brokenness……

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Broken but not alone!

I have been, in the course of my journey through life, asked so many times; “what is a miracle?”. And my answer since April 1992 has really not changed! A miracle is an encounter with The Sovereign God that marks a transformation to one’s entire being producing an altered and improved state thereafter. An encounter that cannot be literally expressed sufficiently enough because more often than not, there is such a new and heightened relationship with the source of the miracle that words cannot adequately capture. All miracles have an outward manifestation, be it healing or just simply waking up in a new day. However what i have also learned is that the most important miracle is not the healing of broken bones or the provision of a new job but it is the healing of a broken spirit. Since 2013, when I published my first post, it has been my prayer that every post transcend just mere reading of words but actually filters through to the spirit where ultimately transformation takes place. It is usually in the midst of brokenness that the significance of a miracle is most felt.

Has my life been devoid of miracles? Definitely not, birth in itself is a miracle and no matter how much you strive to attempt and define the source of the miracle, there is just One Source that evokes the miracles that matter. Do miracles always have that earth shattering result that has become so widely associated with being a Christian  as publicised in the media? Definitely not! My own experiences have shown me that the miracles that occur with no fanfare, no thunder rumbling or multiple lightening strikes on the same spot, are those that tend to affect you more significantly. It has almost become conventionally accepted that more potential is attributed to the miracles that come with fanfare and blowing of trumpets, which I think is somewhat like missing the mark. Nonetheless when you can percieve in the stillness of the moment within your spirit the beauty of the miracles that occur every day, then the profoundness of that miracle and its associated benefits are truly yours to enjoy.

In the course of the last two weeks, I have opened up my heart to more people especially those living with some neurological disorder as I am and those who, even though are not ailing, but by virtue of being caregivers to family and friends are also part of this group. Within this group, I have seen such resilience and defiance to being constrained and made a prisoner of Parkinson’s or Dystonia, that with every encounter I consider myself truly blessed. It is in the chats and conversations with these amazing group of people that I whole-heartedly attest that I am in an arena filled with champions. Champions defined not by the physical parameters of bulging biceps or stunning physiques but defined by their refusal to give in to these disorders and their astounding sincerity of actions that can only be fuelled by true love. In all honesty, this caption was born from the utterances of an incredibly amazing man whose craving for donuts and his humorous videos make him extra special. With his permission, I want to share his words;

If this makes any sense, there’s been an unimaginable benefit to having this disease. What are you talking about Uncle Donut? Well, I’m glad you asked, so hear it goes. If I didn’t have this disease, I would have never been exposed to a world where people who have such compassion and kindness, struggle with the simplest things. Being on the outside looking in, I would have never known that the person beside me in the store, may have just been through a Dystonia storm, or my neighbor down the street may have had Yopd (Young onset Parkinson’s Disease) and smiled while taking walks with his family. Physically I was strong and confident, but I have learned something about that. True strength is fighting everyday to keep going, even when your body says no. True strength is when you have a dystonic storm, but you get up to make cookies with your kiddos. There’s so many stories I could tell you, that I read about. I’m overwhelmed by a world of compassion where you are not judged, mocked, or belittled because of your disabilities. A world that welcomes you with open arms, and its ok to have bad days and not be criticized. I would have never experienced this, had it not been for PD. My eyes were truly opened, and I’m thankful to be part of this world. So please keep fighting, people don’t realize how beautiful and incredible you are. You may not feel this way some days, but I’m here to tell you, you are a bright light in a dark room. Much love guys.” – Keith McKoy

Reading this just allowed me re-appreciate the uniqueness of our individuality, expressed through the choices we make everyday. Even when we are broken, there is a miracle there if you can only just change your perspective and focus on the world around you. It is a miracle that defies the weakness, fragility and limitations of our human body. It is a miracle that forges a more resilient spirit, acknowledges that we were not created to be alone and taps into a Core that we never realised existed. It is a miracle that produces the strength to love someone else regardless of location, language, skin texture, size etc. It is in this brokenness that we can truly love in deed and not just words, and that is itself is a miracle. As long as we stand side by side, through the billowing and raging of the storms, through the darkness that seems unending, though the unpredictable and severe dystonic episodes, there is a miracle occurring through it all. Today, once again, I choose to give and when I have nothing more to give, I will stand/sit in silence with you because every life is special and nobody deserves to be alone in the storms of life.

עד שנפגשנו שוב, אולי התענוגות שלו להיות העונג שלך לעשות

Adios!

 

Behind the walls….

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https://redzhis.files.wordpress.com/2017/06/Behind the wall

Behind the wall

Photography is a hobby of mine, getting more difficult with this journey I am on, but I learned as a child that a picture is worth a thousand words. Words come easy to some, not on account of the possession of a mouth, lips, vocal cords or hands, I opine that they come easy based on who you are on the inside. Words have always been an essential part of humanity or better put, communication has always been an esssential part of humanity. In war or peace, communication always played a pivotal role. I look around and realise that without words and communication, not much would be the way they are today.  It is therefore not very difficult to surmise that we all use words allbeit in different forms. How we use them is an issue on its own, but the way we use them guarantees either a reaction or a response.

A couple of nights ago, I was telling my daughter about the biblical story of Joshua and the battle of Jericho, and when I told her that the walls were so enormous and fortified that chariots could race above those walls. Now we are talking about at least two war horses (noted for their temperament, constitution and loyalty), the chariot (usually constructed from wood with a decoration of some metal filigree) and one adult. Now that there in itself is some weight, by the time you factor in the effects of the force transmitted into the walls by the running hooves, the rotating wheels etc, it is best imagined that those walls were not a foray into construction by some individual who felt bored. They were built to withstand, provide refuge for the inhabitants of the city especially in times of war and also exude a sense of peace as you gained entrance to the city.

This was not what I intended to talk about however, in the light of recent happenings, this has been birthed. Walls signify fortification and with the evolution of dynasties, we still require walls even as individuals for our residences; be they grand or tiny. Breach the walls of someone else, without invitation, and you are bound to suffer the consequences of whatever you encounter behind those wall. I recall my first experience in erecting walls; the walls for the family home built by my parents, I remember the foreman spitting out expletives when the wrong mixture of cement, sand, gravel and water was used. For the ‘security’ walls, the concrete mix differed from what was used for other parts of the building and despite the grumblings of the artisans and workers, they just had to get it right. In order to gain access to the house, you had to first get past the wall and it was so much easier when you were invited in (we have always had guard dogs, as children and when we were still in the nest, set loose at night). Behind those towering walls, there were secrets that could only be guessed by those walking on the outside and therefore in times of conflict, reconnaissance was vital.

As earlier mentioned, photography is a hobby and with time, I realised that I preferred staying behind the camera rather than being the subject of a photo shoot and till this day, my best pictures of people are those taken when they were unaware because it tells you a lot. And so I am of that quaint school of people that believe that man has yet again tinkered with the status quo because there are so many ways of editing pictures that they just come across as unreal and therefore the thousand words are inadvertently influenced to create a story that appeals to the subject. I can remember visiting a studio, just to get some passport photographs and when the passport pictures were given to me, I almost dropped them in shock because he had gone the extra mile of editing away my freckles! This was at least 7 years ago, so the leaps and bounds photo editing has come through is not something I want to even deliberate upon.

As an individual, I believe that words and instrumental music (classical, opera etc) are true expressions of the writer’s hearts and if you attempt to tinker with that then your objective had best be communicated as well. If the objectives are not properly or clearly expressed, not only is that an attempt to mislead but you taint the interpretation. Admittedly, it took quite a prodding before I joined Facebook and the like, however I try to stay true and for years, my Facebook account lacked any pictures of me. The other day, with my daughter going behind the camera, I made a short video of what an episode of dystonia looked like and I posted it on my facebook wall, I am still reeling from the flood of goodwill messages that are still coming through. The most popular comment from people has been been, “I’m so sorry, I never knew this what you were passing through”. I am still stuttering from the number of calls from people who called me after seeing the video. In all honesty, that will go down as one of my first attempts at emerging from behind my wall.

By virtue of the compelling and overwhelming need to conform, many of us have successfully, for years, hidden behind our walls; tucked away securely in our comfort zone reluctant to reveal the truth because the truth is not something that is a crowd pleaser. On the contrary, it actually reveals more that you had wanted to and the interpretation is best left to the recipient. Nobody wants to appear weak and vulnerable because we have become brain washed with notions that vulnerability is a sign of weakness and weakness is something that should be oft despised. What makes us human does not lie in what we have acquired over the years, it is in the everyday gestures and expressions of our hearts carried through on platters of kindness, compassion, hope , trust, faith and love. No matter how much concrete we pour into creating our impenetrable comfort zone, whatever you portray when you want to emerge, is a far cry from who you truly are and that in itself is a deception of gargantuan proportions. In order to deceive others, you first of all have to deceive yourself and rationalising it logically, the person bound to be hurt the most is YOU!

Discernment is a gift that many of us have been blessed with, but few have bothered building it up and developing it with the right nutrients just like we do with our bodies. We have chosen to ignore the needs around us as we journey through, confident in our own self told fact; “it is not my storm” and “if I were in your shoes, this is what I would done”. Can I kindly hush you before you make a bigger mess of yourselves, YOU CAN NEVER KNOW HOW YOU WOULD RESPOND OR REACT IN THAT SITUATION UNTIL YOU HAVE GONE THROUGH SOMETHING SIMILAR. As we saunter down life’s streets, we encounter walls of all kinds – some standing tall, some crumbling and in dire need of attention and some completely broken down. What do we do when we are opportuned to see beyond those walls? What do we do when we come across a broken down wall? Do we join in looting the spoils or we help in rebuilding? Self-control is a trait (scripturally likened to a wall) that we all must have as individuals but when our walls become less of a necessity for us and more of a ‘keeping with the flow’, then it is time to stop and re-evaluate.

Some of us have been so sucker punched by experiences that we lay in the dirt, completely spent, greedily grabbing air into our lungs and watch in dismay as our highly decorated walls fall to bits. We lack the strength to even pull ourselves up but there is a choice to be made here, “get back on your feet, soldier!” or curl up in the dirt and wait for the final curtain drop. I might still be reeling from the annoying attempts of dystonia as it tries in vain to re-define me, but I will rise and with tottering steps, get out from behind my self-built wall because just down the road, there is a city whose walls are fallen in battle and its citizens paralysed by the sheer enormousity of being prisoners of war. There is no joy in being a prisoner and while we are constrained by events that we didn’t choose, we can redefine our priorities and make our lives count for something. This might be that chance to reach in and pull out that gift that you have so selfishly used on yourself and for yourself alone, and instead choose to use it in assisting someone else. I can whole-heartedly assure you that your fears of it running out will not materialise.

True, money answers all things but does it provide all things? And if the answer is a quiet yes muttered beneath our breath then it would make so much sense to apply it to providing channels for those things that cannot be bought. There will never be a perfect life, no dwelling on the mountain top forever and whilst you are basking in the sun, and getting a tan or luxuriating in the freshness of the cool air from the ocean side, remember that the sun will set soon and when the darkness sets in, pray that you do not stumble. Storms will always come, we can do nothing about the size or strength of the storm but the factors that you can influence, please do not hold back. For today, you are able to shelter a wandering stranger as his night engulfs him, tomorrow is a mystery that we can prepare for today by just being human.

Remember “We are not human beings having a spiritual experience. We are spiritual beings having a human experience” – Pierre Teilhard de Chardin. My thanks go out to those who in the last few days (and those to come) have with no hesitation accepted me as their friend and brother, especially those who like me have hidden behind the walls of dystonia and Parkinson’s syndrome, know this; Champions can be born great or they can learn greatness. Each of you are champions because as long as you arise each day not knowing whether it is going to be a good day or not, you are making the choice to make your life count for something. No matter how heavy or long a rainstorm lasts, it can never wash off the smile on your face.

עד שנפגשנו שוב, אולי התענוגות שלו להיות העונג שלך לעשות

Adios!