When the Music Fades…..

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Fading Away…

Two days ago, my brother and friend committed the earthly remains of his wife to the ground. And it’s still a shock to me however that’s the fact, she who I asked after a week ago is no more and with a voice weary from pain and sorrow, my brother acquiesced that regardless of circumstances, we are strengthened by God. With God, there’s no limit to His Strength reserves however in times like these, I’m quickly reminded of how fleeting life is. Now, the future belongs to Ben and his little kids and moving forward isn’t an option but a choice to be made even amidst the grief and sorrow.

Being an ardent believer of faith, I cannot describe the deluge of emotions he’s going through however I can do something, and that’s be a friend and brother. We were not created to be in isolation however without a complete grasp of what our purposes are, we must trust Him who made us and keeps us grounded to things that though transient in nature they may be, yet the spiritual connotations are immense. The reality that is gradually being eroded in today’s world is that we have juxtaposed two parallel truths; we are spirit beings on a human journey and not human beings on a spiritual journey. Our destination determines and influences the choices we make because it does not require a degree in theology to acknowledge that to this life we live, there surely is an end and to every end a beginning. The question therefore is where and what are our priorities?

Having lived with dystonia myoclonus for nigh on a decade, my life’s journey has been nothing short of a roller coaster of miracles however still I press on disregarding what today’s circumstances are saying. Life is fleeting, measured in moments and therefore it is befitting that we use the temporal to secure the permanent. With each waking moment, I ask myself, “what if it is today?” and that I assure you greatly assists me in prioritizing. Be it in little gestures of kindness and compassion, a life is touched with joy and a journey continued with hope. I therefore find it rather bemusing when I see a need that has passed through lots of people but yet remain unchanged, and when it eventually grabs my attention, rather than pass it forward, I try to ensure that it doesn’t remain the same need when I received it.

What’s the wisdom in gathering what is temporal, intentionally ignoring the needs of those around us, only to leave it all for someone else – sometimes people we never knew. I’d opine that’s a question best asked and answered individually. Recently I marked a milestone in my life that many haven’t, and the amusing thing is that I wasn’t stressing myself out and so what a delight it was. A gift unexpected but really needed. To share something ongoing, we embarked on a funds drive for a school project and this necessitated soliciting for contributions. One remarkable thing I’ve learned on this dystonia journey is that life is as unpredictable as the weather. Yes, you can make forecasts but more often than not, the forecasts are not always spot on. I guess then that the unpredictability of man is something that should be no surprise to us however it really hurts when you get doors slammed in your face. It really is inconsequential whether the door was shut politely or slammed rudely, the truth is disappointment doesn’t really have a closet full of attires.

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It,s just a door.

Pretty certain these responses are not strange to many, “I’m sorry, I’m currently not in a position financially to help!” but the stranger thing was I got this response from 3 people who do not know each other, live on different continents and are almost at the peak of their professional careers. Was I upset? Definitely not, because I’ve learned that we (not me anymore) earn to make a living but we give to make a life and so for me, I always choose to make a life by giving from the transient accessories of my journey, no matter how scarce they may be. Just like attending a concert, we have let ourselves become so dialed in focusing on the performance that we often forget who is just by our side. No matter how long the concert lasts, there will be a time when the end is nigh and the music fades. After that, we must move on or remain trapped by choice at the wrong location doing the wrong thing.

The most inspiring people are not those measured by society’s definition of success but rather those who have consistently used what they’ve been blessed with to bless others. As I horrifyingly witness the inevitable slide of humanity from the core values of yesteryears to something that can only be described as inhumanity, it simply expresses how easily we have forgotten who we are or who we were meant to be : to shine light in the darkness, to sow peace where strife exists, to love when we feel the least like loving; that almost summarily in one broad brush stroke describes what our lives should be.

Do I write from a place of resentment? Heck, no! There’s barely enough room on my plate to actually take the best care of myself and medically speaking, going down that route bodes nothing but ill-will for me. The beautiful thing about faith and trust is that we push ourselves to heights previously unattainable and see things from a completely different perspective. It has never been about you; casting doubts and fears away so that we are unburdened and ready to walk our path with nothing but trust in The One who made us. To many, it might seem foolish but remember the music fades at some point and beyond that, there’s little left for us to do. What we did is what will matter and woe betides the man or woman who fritters away the future for today’s pleasure, despising everyone else that doesn’t fit into your carefully selected category.

It is sheer wisdom to realize that what matters the most is not what we receive but rather what we do with what we have received and so I opine that keeping this fact in front of us will inadvertently put us on the right path. Even as I grieve alongside my brother, I am confident of this fact that He has not brought us this far just to abandon us and when it seems like I am abandoned, that is when I know that a transition is on its way and so my job is to brace myself and keep pushing ahead. “Tough times are inevitable, and this is a fact many of us don’t actively try to face. But if we recognize that we are capable of doing so, and we are prepared in our attitudes and philosophy, we can grow as people and go on to push the boundaries and experience a richer and more fulfilling life.’

Let us remember that “Difficulties are meant to rouse, not discourage. The human spirit is to grow strong by conflict.” – W.E Channing

עד שניפגש שוב, מי ייתן וcountenace יזרח לטובה עליך!

Adios!

Taking it back….

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Whatchu gonna do?

Sometimes we have to take a step back and realize what is important in your life; what you can live with but more importantly what you cannot live without.”

Well it is a great day to jump right here and shake off the assertions of the ‘normal’ every day life which I got accustomed to in the past (the tale of being jumped on by myoclonus, a rare neurological disorder is something that always inadvertently pops up in my posts), got liberated and intend on staying liberated. Phew! It just sneaks up on you and before you know it, there you are, being dumped upon by everyday activities that are not the daily activities of your own choosing. Round and round we go, seeking to break away from the vicious cycle that has life always wanting to be the administrator. The weird issue about that picture is who should really be the one in charge because someone definitely has to be in charge and so for me, I am teamed up with the Creator and what an awesome team it is. I get to determine my daily activities based on an understanding of what He has defined and determined for me.

With reference to my identity and earlier posts, we are all prisoners of birth and someday we have to make the choice – remain prisoners of birth or break free from the shackles that are almost like a second skin. It has been a harrowing period of some sorts these past few weeks as I seek to clear out the cobwebs that have gathered in my very own niche, no thanks to myoclonus but this is something that I was made to do – occupy and be a value adder. I realize how amazing it is that we somehow inexplicably choose to be driven by life and its abstract goals – a choice made by our refusal to choose (cowardice) and fail to realize that the very priorities that should count in our lives are those that we ditch in a bid to meet up with the running around game. But, hold on a second, what is the running in circles for? and why engage in something that you neither know who set the rules of the game or who administers the benefits?

It is somewhat amusing and so exciting when I get to see that moment in that one individual when their dimming bulb starts glowing so much brighter as the awareness of who should be in charge of their life dawns upon them. That, dear friends is something that will continually drive me in my battle to stay in charge of my life regardless of myoclonus and its creepy associates, the individuals who daily cross my path with sniggers and disparaging comments, the nay sayers and the ignorants.  Regardless of how numerous they are, I know that there will always be that someone who gets to see the light – literally and more. We were not dumped here on earth because of some clean up exercise somewhere, absolutely not. We were created to take charge, created to be champions in life – riding high on the surf and standing tall and strong even in the twilight times. Somewhere things went wrong and so progressively, we find ourselves enmeshed in a world where the absurd has become the norm and the appropriate has become despicable. Quite a few remarkably absurd events have occurred and more absurd explanations have been offered and less than a ripple has been the reaction, such hopelessness and despondency.

I was among a privileged few that were under the ‘tutelage’ of Chip Ingram and for the half hour or less, it was another opportunity to see what we need to do to remain human beings. Like an epidemic, a wave of severely skewed reasoning patterns has birthed a multitude of people whose overwhelming desire is to do whatever life lays for them and so all around us are unique individuals, countless but distinctly crazed by their inability to choose. We have become less human beings and more human doings, everyone running viciously doing and doing and doing, each attempting to mirror another’s misunderstood drive. And yet we wonder where all the care, compassion, kindness, love, warmth has gone to. The very things that make us humans are being ditched by choice so as to be that which we certainly do not want to be. And in an ironic twist, many spend the little time they have as themselves whining about stress, disillusionment and a false grandeur of reality. The moment of truth is this, are we bold enough to make those choices that will make us stand out from the crowd? Are we bold enough to take back our humanity as individuals despite the torrent of derision and contempt that is bound to be hurled at us? It is all about taking it back, and the power to do so lies in your hands.

Now, it may somewhat be construed as strange coming from me – an emerging victor over this neurological disorder, but truth be told that today I stand different and yet victorious, liberated and bold, not daunted in that which I am because the scars I bear are not self inflicted but signs that whilst I still struggle, my victory is sure and certain. The path through the valley may still come up but now I am more strengthened because I know that there is One whose report of me I still stand by and choose to believe. I am taking it back, and pretty much surprising even myself. Sometimes, the sweetest victories are usually savored after the hardest battles and to me this is one delightful experience that I deserve and intend to savor to the best of my ability. My favorite personal question is ‘why am I holding onto what I have in my hand?’ and I always find that when I let it go, I get back more than I had in the first place. These are truly the best days of my life and I am thrilled to know that they just began.

“You get that one chance; and damn it, you’ve got to take it! If there’s one lesson I know I will take with me for eternity, its that there are those things that might happen only once, those chances that come walking down the street, strolling out of a café; if you don’t let go and take them, they really could get away! We can get so washed out with a mindset of entitlement– the universe will do everything for us to ensure our happiness– that we forget why we came here! We came here to grab, to take, to give, to have! Not to wait! Nobody came here to wait! So, what makes anyone think that destiny will keep on knocking over and over again? It could, but what if it doesn’t? You go and you take the chance that you get; even if it makes you look stupid, insane, or whorish! Because it just might not come back again. You could wait a lifetime to see if it will…but I don’t think you should.” – C. JoyBell C.

Remember, life comprises of moments and as make our individual ways through life, the moments we cherish the most are those that we took back….if we missed them the first time. We either take them or we live to regret not taking them.

lמסתדר טוב עד שניפגש שוב בזמן שלו

Adios!