It is yet another beautiful day as I look out my windows and just enjoy the stillness of the moment. To many, it is just another day but for a few, it is a new day completely replete with its own portion of ups and downs, joys and despair, achievements and failures – summarily it is a different day. With a temperature of 17oc, it is truly an amazing day to possibly get atop a power bike and let your hair down even as the wind courses through your hair and reminds you with startling clarity that you are alive in today. Remember that today was yesterday’s tomorrow so if for nothing at all, bask in the fact that you made it through.
I recall vividly with a smile creasing the corners of my mouth, one of the very first lessons instilled in me by arguably one of the greatest men that has walked and is still walking the earth. My father! “Always remember that the greatest battle we all have to fight is to constantly be ourselves in a world that persistently and consistently wants to make you someone else.”
Now, I can understand the meaning of every word in that sentence and wish today to share it with you even as you take out time to go through this piece. Of-course, there are a million and one things vying for your attention but Opportunity Cost….right? As at the last time, I paid attention, it was said that billions of humans inhabit the earth and guess what, there are no two identical humans. Siamese twins? Nope, I am getting down to the nitty gritty of high school biology – the chromosomes and genetic make-up can never be the same. In other words, there are billions of different humans inhabiting this earth and so the questions comes a-begging, why settle for something less than who you were made to be? Different.
Last night, I watched Piers Morgan as he gave room for David Cook (I think) to let us into his mind (he is presently incarcerated for life for murdering both his parents) and what really stunned me was when he was given the opportunity to reach out to those who could be contemplating similar acts. In his words, ‘I know what you may be going through right now, and the events that may be pushing you to take that plunge. I can assure you that I have been there and it is not worth it……..’ Now that brief clip reminds me yet again that irrespective of the circumstances life seems to always leave you in, there is the issue of making choices. And because we are made to be different, we all have to make different choices.
Now one of the ‘beautiful’ things about being dystonic, is that without seeking my consent, I am compelled to be different; the very thing I have always strove to be. Now it makes me doubly different, isn’t that just a blessing. And even with this incapacitating pain that recently began on my right foot and the traction devices that I wear regularly to ease the cervical tremors and the pains of sitting and/or standing (I only need a costume to complete the look because the world really needs super heroes). Living with dystonia is a blessing in disguise, funny right, considering that there are only about 70,000 UK residents living with dystonia so that makes us a small community and being able to be on the same page with even a tenth of that is simply an awesome opportunity and a unique pedestal to reach across and touch the lives of just a few persons beginning with that one person.
Why are we so scared to be different? What prevents us from daring to be different? Care to know what my answer is? Nobody or nothing, just YOU. I was talking with an old high school mate and making him aware of dystonia and as he was expressing sincere concern for my well being, I reminded him that sometimes, especially when least expected, life has the funny habit of throwing you a curved ball and you had better swing as hard as you can because that ball just has to be dealt with. And mind you, those balls are hard and can really hurt when taken in the face of the body. So keep swinging, practice makes improvement.