Wave upon wave…

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Adrift

“You can’t wait until life isn’t hard anymore before you decide to be happy!” – J.M ‘Nightbirde’

It’s not about the decision but rather the elusiveness of happiness. Battered over and over, each wave harder than the latter, yet the stone quietly disappears still glistening, every encounter ripping a piece of my soul. Would you let me see beneath your beautiful, each shuddering breath anticipating the usual no? You don’t know me, you don’t see me but you clamor like the earth and its fullness is yours? How much longer can I bear this weight? How broken am I? Perfection, an oasis in the shimmering distance, unattainable yet teasing.

My clenched teeth hidden behind a smile is the only visible sign of the agony that besets me with every breath. Love surely doesn’t live here anymore however beneath my tent, I still hear the raucous laughter of the naive, the barely concealed glee of ill gotten weight, pockets weighted down that they burden you unknowingly. Here today, gone tomorrow; saddled with the burden of keeping count, I’m almost terrified to look at pictures just to acknowledge the spaces that once were occupied. How much longer can I go on? My question is rhetorical because the silence just magnifies my inability to comprehend.

Dreams disabled? It takes nought to do and still the dreams shatter but not the ability to. It’s eerily quiet at the moment and despite how hard I try, this is a moment that just won’t disappear. Where do broken smiles go? Where are they buried? Forget the fading applause, the night is certain in its duties. Disregard the glitter, they are but crumbling dust in my hands. The whispered terror, the blood shed, the victory won; it’s a maze I’m in but with each passing second, my limbs can barely function. This can’t be my home because I’ve walked the streets of grandeur once, hope is all I’ve got now and like the sand in the hourglass, it trickles away.

Just before this flame is extinguished, I grab the next candle, all but wax….hope remains surely. In the twinkle of an eye, the breath ceases and with the silence, I can hear it no more. Fifteen men on a dead man’s chest? Begone vile ones for he too deserves some peace. Your rum laced breath, overpowering as you prerorate, nothing is yours, you seem to forget. Naked you came in and naked you’ll depart, how do you so easily forget this? There’s no mountain high enough to shelter you, no valley low enough to hide the echo that resonates with your foolish gestures.

The years go by, and I find joy in the seed of my loins. Nothing can be done that hasn’t been done, yet still I refuse to cease my search for light in this overwhelming darkness. It’s not my garment of choice, each gust of wind blowing away a piece of my tattered cloak and still I must choose. When will the end come as I continue on my journey? What companion awaits me ahead is a question I cannot answer however I must ask. And if the ire is unleashed, what do I fear cos there’s nothing left.

70% hypothesized, but the tears so fast-flowing gives room to doubt. In my lament, I know there’s a message for any who cares to listen. You cannot cry me a river, the drought has been long and severe, cruelty is its driving force. The cold gnaws to the inside and all warmth is almost gone, and still I’m here; hope for the future, my only respite. In Your Arms, I find refuge and although comprehension might not be there, I’ll take what I’m given and yet hope. My strength has since depleted, the hollow echo bearing witness however it’s not by strength.

Cast adrift like flotsam, the waves are even more brutal, a purpose to be fulfilled regardless of how empty I fill. My journal has more endings and I hope, still I hope that there are also beginnings. Not the beginning of a journey, this one I’m yet to complete but rather the beginning of a restoration. I’ll yet hold on even as my sinews come apart and my ligaments give out, it’s nothing new but this I know “A man who has not prepared his children for his own death has failed as a father.”

Rest in peace, GED, OEBI, CD, RCB, PKW, NOC, CJO, JNM, KL, PZ, WS and may your memories be blessings to us.

In the stillness…

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Be Still

There will always be that time when it seems like I can barely escape the shadows. When all else quietens, and the sound of my beating heart reverberates through the silence. It is in those times that I reminisce on the topsy turvy of the journey I call my life’s tale and find true beauty in the ashes.

From the plucky little chap in his bright shorts and shirt, tugging on the leash of my toy doggie; Snoopy. The world in all of its enormity, a conquest to be had with nothing looking remotely like an obstacle. I remember how much of a daredevil I was, mischief twinkling in my eyes with hands and feet that couldn’t stay still for long. Searching for and accepting the craziest dares, it looked like I was invisible but life is a mystery box and when jack pops up – it is either of two options, a heart attack or a rush of adrenaline. Regardless of how neatly life appeared, a neatly stacked line of dominoes, nothing really prepares you for the uncertainties.

Even through high school, when friends were made anew with a promise of always being there, life was like a walk in the amusement park with a pocketful of quarters. Never hungry or butt naked, every phase was a trail to attaining a milestone and life was truly beautiful. Sneaking through the pantry with mother’s catering books, whipping out pastries and trying out recipes, nothing could possibly have been better. However there’s always going to be that turn in the road, when visibility is so limited and despite how hard one tries, you cannot see beyond the turn. Stopping, getting down and re-evaluating is not always feasible especially when the thrill of the ride is euphoric.

I remember the concussion I suffered when in my haste (why I always ran is still unfathomable) I ran through the discus sector and got hit by the discus. I remember having my fair share of being picked on and childhood fights. I remember walking home in tattered clothes because my ‘experiment’ blew up in my face and gave me 2nd degree burns (earning the nickname Acidman). I remember being so sick only to find out I had weird allergies. I remember witnessing a nurturing home and loving relationship being torn apart by folly and the influence of wrong company. I remember my first automobile accident, tumbling over and over. I remember being shot at. I remember waking up one night unable to breathe, the race to the ER. I remember journeys to strange places and encounters best left unshared. …….but I survived because of God’s mercy and love.

I recall the university years, being the enigma to many even as I sought to stay true to myself. Plunging headfirst into as many events as I could, getting the down side of misplaced priorities when I chose to continue my internship despite the fact that lectures had commenced. Grateful for the fact that I could be the ear to those in need, a shoulder to cry on for the broken and the elixir for the depressed. Life was beautiful indeed and with the mixture of highs and low, exhilarating describes it best. Graduating from university and going off to the unknown, I knew I would survive because that was just who I was. A blend of healthy spiritual fundamentals and a healthy body, I blossomed within an awesome relationship with God. I was prepared for anything!

Commencing my work career, I thought I had it all planned out and even when I dropped the white collar job for a stint in the military, the confusions of many was the least of my worries. Parenthood was another season and as always I had it all planned out in my head. Setting up a trust for tuition, acquiring what I wanted, it was all going well but it’s in our nature to plan however it is God who decides. Knowing I had that relationship served as a buffer when things went south occasionally, however I had been raised to believe in myself and so I always did. Just when it seemed like I had it all together, life happened. Series of events that I never imagined started unfolding bringing to fore the idiom, ‘when it rains, it pours!’

The culmination of a life in tatters was in December 2011, all around me that carefully built life in heaps of wreckage and just like a skilled burglar, night had suddenly and swiftly crept up on me. Struggling with those fiercely entwining tendrils of darkness, it was a struggle to make head of it all. And each time, I chose to head for the light, the darkness just got longer. This was no medical condition, this was my life now, almost completely subjected to the dictates of the rare, incurable neurological condition termed dystonia. Then it hit me right in the gut; there were no voices lifted in celebration to be heard, no hand to lift me up, no strength to light a match. This was now my life, like a pariah condemned to dwell outside the city walls, isolation was a welcome thing. However, we are a result of our choices and so I learned to bargain with an adroitness I never knew existed. Learned to lace my own shoes with brow furrowed in pain, every little gesture a battle of wits, things previously taken for granted were now things I had to relearn. Circumventing steps to conserve my little energy, being the object of compassion either as I was wheeled in a chair or as I struggled to make my way home leaning heavily on my cane.

In the stillness, my eyes slowly adapted to the darkness and my ears became attuned to the groans of those fallen around me. This was my life but still there was a purpose to it and regardless of the absence of ‘friends’ or ‘family’, one truth stood out; this was my life and so every choice I made had to count. When the cold hands of depression sought to console me, I chose to shrug them off and in the stillness, I found hope that I hitherto believed was lost. I found friends who became brothers and I realized that purpose is not shaped by your experiences rather it is given more clarity during those experiences. Today, I am not just a survivor but I am a victor because even though I have been scorched by the flames, I am now stronger just by the process of walking through the raging flames.

It is in the stillness that you learn some of the hardest lessons, letting go of pride and ambition whilst embracing compassion and aspiration. It is in the stillness that I have learned that my life is not dictated by the size of material wealth but by the riches of intangible values. It is in the stillness, empathy assumes meaning and pain can be shared. I have known abundance and lack, however I have also learned that contentment is wanting what you have, kindness is giving when all else is screaming, ‘save for the rainy day’. It is in the stillness that I have learned that it is better standing in the rain with a friend or someone in need than struggling not to get wet beneath a poncho. In the stillness, I have learned what true strength is, what trusting God means and what living actually means.

Sticks, stones and words will hurt but the resilience of the human spirit is so much more greater. That is what will define you when all else has gone silent. That is what nothing can take away from you except you choose to let it go. It is all about the stillness….

עד ניפגש שוב, תן אהבה שלו למלא ולשמור אותך!

Adios!

CEO, Inspiration Inc…..

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To start with a rueful comment about how frustrating writing can get is right about apt because how else could I tag the emotions I felt 7 hours ago? Finished up a piece and was putting on the bells and whistles, suddenly Shazam!it’s gone and when the device in use is my back-up, suddenly the realization of how much I miss my laptop is suddenly brought to the fore…..Oh well, since I do not want to ‘join’ the vanished piece then I guess the best course of action is to shut down, call a time-out and welcome the new day. That I would categorize as being one of the unsavory duties of a CEO, there is no other table for the buck to go to. This event along with the ones happening in recent times make me question how busier can living be? How can I live without writing? It started off being an avenue to channel all the hurt, bitterness and resentment in a positive way but now it is becoming a vital part of who I am daily.

“All men dream, but not equally. Those men who dream in the dusty recesses of their minds wake in the morning to find it was but vanity but those men who dream by day – these are dangerous men, for they dream with open eyes to make their dreams comes true.” – T.E Lawrence. Right off the top of that, I think I class myself as being ‘dangerous’ and were it not for the constraints of dystonia, I probably would have pursued a career in which danger played a huge role. Why? Danger lurks around every corner so why not best it as quickly and as often as you can however it is essential that you know yourself – stick to the shallow side of the pool if that’s the extent to which you can push yourself.

I have since learned not to view myself as strange whenever I tell people that I do not dream (and this is whenever I am able to wrestle insomnia to submission) but dreaming due to the heavy influence of lofty aspirations and objectives, that therein is a totally different subject matter. This is what I do when life chucks lemonades at me, I pick myself up, ignore the bruises and welts and find the nearest food processor and make some lemonades (summer is fast approaching anyway). Although turning and tossing, watching the hours slip by elusively is no fun but rather than give in to grumpiness and full-blown irritation, I dream and then act because I know time is no servant of any creation. Developing that uncanny ability of identifying the pros and cons is not very difficult but transforming the cons to pros is where the heavy lifting is done. Can all men dream? Most definitely! Can all embark on making those dreams come true? That is a question best posed and answered by individuals whose lives are greatly determined by their personal choices.

Some weeks ago, I posted something on social media and one of the many comments (in interpretation and in literal candor) was ‘you are an inspiration!’. Well dystonia or not, compliments are a pretty good boost to one’s psyche however over the years, I have somewhat become adept at separating the default comments from the sincere, unreserved comments. Now I do get to hear that comment frequently but for some reason, this particular day’s comment got the huge wheels in my head churning (which is something I try very hard to avoid because of the adverse consequences, it is so wearying getting them to stop) and I alluded to the fact that inspiration is a lifetime career with a lot of pomp and allure but ironically no financial remuneration. Oh, that sounds really grim especially when today’s world operates on the measure of tangible wealth that translates to an individual’s net worth. I do opine however (and most assuredly this is not borne from a place of lack) that if we were to tag everything in our lives with a physical cost, that would be utter shameful because then it would be most uncomfortable explaining why many lives are constantly in the red.

I remember that during those ‘ship-up or ship-out’ regular exercises as a growing child, one of the oft repeated phrased associated with those exercises was, ‘this exercise will help stop you from behaving like a gutter bred child!’ It took me a couple of years to completely decipher the meaning especially since it was associated with those frequent exercises and despite the fact that I truly was a ferocious reader and hungry for idioms and definitions but even those were not strong enough motives to ask a visibly upset parent to explain what that phrase meant. In the acquisition of knowledge, seeking the truth and/or definition yourself usually is the best way to go because when you do get the meaning, you somewhat get a personal patent that ensures nobody can take it away from you. And so attempting to tag a price to everything we do is akin to behaving like a gutter bred child, however the gutter has never been ranked on the list of suitable accommodation for humans. So get the heck out if you think you are in one or have been told most of your life that the gutter is where you deserve to be.

Every new day, I am thankful for the countless opportunities to be inspired by the lives and events that occur around me but most especially I am inspired by the false facade that many put up because when you just genuinely show some humanity, then you are confronted by the turmoils that many face and are trying to hide from by concealing them beneath this thin veneer. Just as the trickle on the surface of an aging dam is a sure sign of the torrent that will follow closely, so is the certainty that someday that facade will crumble underneath the pressure of trying to avoid charting your own path. It takes little or nothing to travel on a well worn path but remember that just as our DNA varies so do our purposes and so investing energy into determining your own purpose amidst the jungle of society and swinging at it with a machete will ensure that you forge your own path and help another begin theirs. We are all interwoven at some stage in life and we may begin together but remember that ‘in life, we meet to part and part to meet’

Life is an exercise in attaining balance; giving vs receiving, listening vs talking, empathy vs cynicism, kindness vs cruelty…the list goes on and at every milestone we attain in life, we must choose what side we want to be on. Seeking ensures finding, asking ensures knowing and knocking ensures access to doors we hitherto presumed were non-existent. It is no easy feat living your life but jumping on the band wagon is not an option because you really have no say as to the direction of the wagon. Being an inspiration means that more often than we think, we give a fellow traveler some company for some distance but then she/he must veer off when the time comes. Sprawled on the canvas of a boxing ring after a flurry of jabs, hooks and flush upper cuts does not give me the license to remain there and be counted out and so despite the urge to remain there, I must get to my feet and give it all I have got and some. And even when it is just the rings that are keeping me upright, there is a person or two out there who can truly draw strength from your fight, so keep at it until the bell rings.

With every new day, I strive to push myself just a tad more than I did yesterday and even when my body is playing out a symphony of agony and pain, that is not enough reason for me to stop, I just have to rest a while and then forge on. And when the inevitable opportunity of meeting a fellow traveler down on his back shows up, I will yet lend him an arm and pull him up. With arms interlocked, feet struggling to keep going, I can still whistle up a jaunty tune to make those moments worthwhile. We are a sum total of many parts and lives, and so to everyone who has played some role in my story, I say, “thank you for being an inspiration!” Because although today seems like it could be my last, I know with certainty that my destination is a place where the constraints of this feeble body will be no more. And so I apply myself as much as I can, without the lurking shadow of doubt to scare me, knowing fully well that ’tis but one chance I have got and so regardless of the cards in my hand, I will do the best I can with them.

Remember that “the real measure of one’s wealth is how much we would be worth if we lost all our money” – Zig Ziglar. Now that is a tough pill to swallow but as long as we remain adrift on the sea of life, we must acknowledge that time and chance happens to all.

פרידה עד שנפגשנו שוב בתזמון שלו, וייתכן שאהבתו של אלוהים להיות אמיתית לך!

Adios!

Hoping; truth and Realism……..

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hope

Hope unconquerable.

Phew! Without so much of a fuss on the part of anyone, we are already in the third month of the year 2015. Surprisingly the number 3, across several divides and discourse, has some bit of symbolism to it and for me, it is many things – Divine sovereignty, my birth month, my position in the order of siblings, and for a while it was my favorite number. Why? I just loved it or better put, I chose to love it however that would be the subject of another write up hopefully. Borrowing the thoughts of Vera Nazarian; “Love is made up of three unconditional properties in equal measure:
1. Acceptance
2. Understanding
3. Appreciation
Remove any one of the three and the triangle falls apart. Which, by the way, is something highly inadvisable. Think about it — do you really want to live in a world of only two dimensions? So, for the love of a triangle, please keep love whole.” 

It has been over 40 days since I put thoughts to word, my sincere apologies to those I have left hanging. The stark truth is we are each made to complement one another and how dreadful it would be if I did not hope and believe that someone somewhere was taking the time to read my thoughts. To you, I say a gracious thank you and pray that your aspirations would dwarf your immediate limitations, if any exist because I speak from the perspective of one who has seen his immediate limitations grow in leaps and bounds. In admitting that, does that deprive me of hope or rob me of the knowledge of truth? Definitely not, I know that I have been created for the long haul and properly equipped at such and perchance when those dark days loom, I also have realized that the resources from which I draw on daily are not and can never be measured by man. I have had everything taken away from me, not by choice in whatever dimension, but I stand today, so much better than I have ever been.

A couple of Sundays ago, I was blessed to be ministered to by the One World Children’s Choir and even as I looked upon the huge smiles and the pure love emanating from their actions – something dark and sinister struggled to shake me off my perch. With a surge of emotions, I recalled how easy it is to feel alone and hopeless but I quickly reminded myself with the truth that there can be no life without hope. How else can anyone begin to explain the chain of events that have uniquely characterized our individual paths through life? What are the indices that reveal the superiority of your life when compared to the next face beside you? As each of the kids went through the routines, obviously practiced but yet seemingly original, I realized that the life we live can and will only be evaluated by the choices we make.

Unknowingly, there is a growing curiosity about the difference between truth and fact. Some school of thought say that truth is subjective while fact is not, others disagree on the grounds that they mean the same thing. I could go on and on however I just want to share my thoughts especially for one who has witnessed both extremes in almost every aspect of life. I opine that both are different – each differentiated by its reference base. For me, truth is simply truth; it is what the Sovereign God says and be you from the North pole or the South pole, there is no higher authority than God. For me, the test is what can you appropriately compare truth with. What people referred to as facts centuries ago have either been slightly amended or completely thrashed however I choose to rely on truth as the only virtue that has the inherent potential and capacity of completely liberating you. Is the truth real? Yes it is. Is it tangible? Now that is bound to be contextual…..

I was privileged to celebrate a new year a couple of days ago, and amidst the outpouring of well wishes, prayers, gifts etc I reminded myself that I could never have made it this far without hope in the truth despite the reality of the situation. it is that hope that births the dreams and aspirations that guide me through the turbulent waters of life. And just like the blinking light atop the light tower, I am guided inexorably by what I have chosen to accept and believe. Regardless of the incessantly changing tides of life, this truth stands out – I am who God says I am and whether I choose to believe it or not, the propensity for hurt is overwhelmingly stacked on the latter. We are blessed, whether we believe it or not yet again, for the sole purpose of blessing others and how ironic would it be for anybody to say that there is nothing each day to be thankful for. This truth trounces every religion and thought process. The follow up question then would be, if we admit that there is something to be thankful for each day then why can we not share that gratitude with someone else. Give and take, Yin and Yang, Life and Death – to everything there is a beginning and an end, an action and reaction, a positive and negative…..

Without us beginning, there would be no end, and then throw in a little high school physics and we might just get stuck in the inevitability of never being able to garner all knowledge. What we do with the little that we have or are given is what determines whether the subject of hope is a reality in itself. We can choose to make our lives as real as possible by giving hope to someone else, because we are, simply because someone gave. We receive only because someone gave. Now I have since acknowledged that riches are not synonymous with happiness, real contentment and joy can only be achieved when we fulfill. Fulfill what? Fulfill that for which you were made, I tell myself every moment that for goodness, kindness etc, it is better late than never. To forgive is divine, but it is humanly to err. To begin again always seems more difficult but do a 360 degree evaluation and you will agree that there must always be a start. For me, each new day is an opportunity to be the hope that someone else so desperately craves and for as long as there is breath in this fragile body, I choose to believe that “When we love, we always strive to become better than we are. When we strive to become better than we are, everything around us becomes better too.” – Paulo Coelho

I must begin with myself each new day and whether twilight catches me still unfinished, I know that tomorrow will begin with me being better than where I was yesterday.

Remember, the quality of whatever we aspire for or dream of can only be made manifest in the quality of what we give others. We are, because someone gave and regardless of how despondent the circumstances are demanding of you – you still get to choose. Make it count!

עד שנפגש שוב , אני נפרדתי ממךלשלוםוטוב ביותר שאתה לבד ראוי .

Adios!

Stacking the cards…..

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Stack it!

Sometimes it just seems that when we are almost at the end of the tunnel, to our alarm and utmost chagrin, we realize that there is just a minor bump ahead of us and whilst our reserves are screaming depleted, somehow we must pick ourselves up and plod on. Now it has truly been a long break from writing and this has been in no way due to a desire to get out from the light but just another reminder that time is a fleeting entity. Whatsoever thine hands findeth to do, do it quickly because there surely comes a time when there can be no gathering of hay and woe betide you that during that time, slothfulness and laziness have become your closest buddies. “Too often man handles life as he does the bad weather, he whiles away the time as he waits for it to stop” – Alfred Polgar

Admittedly, the weather has been of a variety of sorts and to some degrees, it has been a very busy period for me and mine. Getting myself properly set up for the best days of my life and as always, the inevitability of teething problems is one that is being dealt with and suffice me to say that milk is utterly inappropriate for a grown man as myself and so without sounding too cocky, I know what the future holds for me. Regardless of the nay sayers and the doubters, somethings are inexplicably irrefutable – I am a survivor because I am more than a conqueror. And whilst it still saddens me at some of the whiplashes from the past, it will be unerringly obtuse of me to say that everything will be as it once was because from the dying embers of a flame, soot and ashes can be gathered but the brightness of the flame is one that hitherto lost, can and will be reignited again by choice. Somethings are irreparably re-positioned and what an exercise in futility were I to spend my present days in trying to rewrite history when a new generation eagerly awaits lessons learned to be passed on.

Someone ‘disparagingly’ told me in regal tones, “I do not even care to read your blog” and I am truly amazed that we more often than not, without the wisdom learned from passing through adverse times, choose to keep ourselves completely occupied and embroiled with affairs that pertain only to our own small world. Behold the beauty of the new day and compare that to how infinitesimally minute we are but yet we still make that choice to superimpose our views over that which is beyond our comprehension and control. It is such a thing of indescribable joy when the victory chants are finally resounding after series of long battles, and for me, the battles have been long and weary but the chants are just beginning. Without an iota of self glory, I attribute it all to He who alone is the very Essence of my being and true, the bumps may still come up now and then but hear it from me o ye people – my identity is ‘God is leading me’ and where he leads, I will follow for there I know that the end definitely surpasses my wildest imagination. The best victories are those evidenced by the defeated, not by any intentional display on my part (I have got more meaningful endeavors to apply myself to), but because the defining nature of truth is that it cannot be hidden or masked.

My latter days are so much better than my former, and indeed time keeps count as it winds down to an end someday but what a life still to be lived. What opportunities there remain to be grasped and appropriately utilized – be it in the few minutes spent in the office of a young career mother as she determines to let go of the past 16 years and begin again. To her and the many others out there who care to hear, it is better late than never. What is hope without trying times? What is faith without the darkness that so coldly blankets for a while? What is love without the arduous task of navigating the stormy waters of bitterness and derision? What is life without death? What are the realities that so headily confront us that we inadvertently choose to give up and succumb? We are who we are for a reason, we each have our unique identity, purpose and goal and so what an abysmal manifestation of our gifts when we choose to define ourselves by the actions of others? I have long made that choice and because I still plod on, situations and events will arise that will put to test that choice. That choice is mine to uphold and albeit if I have to do it alone because truly we are never alone.

The stars are indeed lining up, truly radiant in their celestial glory – my path is clear, sometimes hidden in the swirls of darkened clouds but clear it is and as I place each foot one ahead of the other, I make my way towards my expected end. My teeth may be gritted sometimes, brows furrowed, disappointments etching out the opportunities and blessings ahead but yet I will because I am led and even through the valley of the shadow of death, I will not be afraid because He alone is my Shepherd and I will never want. This is one story that you are part of, irrespective of the good or bad role played, I am telling it with all the fervour that lies beneath my breast. That can never be taken away from me because I am who I am – more than a conqueror.

Remember “You will become as small as your controlling desire; as great as your dominant aspiration” – James Allen. Again, you have to choose….

החיים שלנו הם מתנות מאלוהים , מה שאנחנו בוחרים לעשות עם זה הוא אובהערכה או זלזול גמור של מתנה ש….. עד שנפגש שוב , ייתכןשהשמש מאירה את הדרך שלך .

Adios!

Stripped bare……

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Stripped n bare

“You must not lose faith in humanity. Humanity is like an ocean; if a few drops of the ocean are dirty, the ocean does not become dirty.” – Mahatma Gandhi

Admittedly, I have been yearning to get back to doing what I love best – this! however it has been a tumultuous period in the last two weeks and just when I desire to get back, something else comes up and yet still I strive to do my own little bit in the lives of the few people who I have been blessed to encounter. Now it feels like what has been dammed these past weeks just wants to gush out and that would inadvertently drown quite a few including myself and so I have to apply self-control or stand the risk of sounding like a blithering idiot. Like I have chosen to inculcate, each day is such an amazing experience whether I am down under, burdened by the travails of this medical challenge and besought by the emotional desolation that so doggedly accompanies this disorder or I am infused by the joys and beauty of life in every waking moment – I choose to make each day count because every day is a Present in itself and like a kid, I carefully unwrap it…….I cannot do otherwise anyway, being obsessively compulsive has its pros.

A few days ago, I travelled to beautiful South Yorkshire and even though travelling is wearisome and I have to make it as comfortable as possible, it is still a necessity. I actually fell in love with the region and above all I loved the fact that it was colder than London because I have learnt to accept that I am also a Super hero – Mr Exothermic, that is also one of the merits of this condition – accelerated metabolism enhanced by the regular tremors I experience, which translates to the need to be in a cooler atmosphere than most people would like. I was privileged to meet Ibrahim, Mark(s) and Hilary – sharing the stories of their own lives and the beautiful attitude they exuded even whilst doing their jobs. Such encounters make me realize that you can choose to continue to mourn what may have seemingly be lost or choose to celebrate that which you are blessed with finding each and every new day. Of course there were the ignorant ones who thought the shakes were quite amusing or those who seemed to be freaked out by my super hero outfit. All put together, it makes every day such a blessing because I know something that can never be taken away from me as long as I breathe – everything is working together for my good. Try as hard as you may, deride me, ignore me, withhold from me – I will still smile because you don’t and can never define me.

I am dedicating this piece to Carrie Ann who has finally bested dystonia and every illness, today she stands on the other side victorious and free of all disorders and disease and whilst her passing is painful but yet again it presents us with an opportunity to live our lives continually grateful that we were blessed to know her.

Amazingly, it is no news that we may be having the best winter since 1947 and honestly I look forward to it – weird or not! Every time I gaze out my window overlooking the front lawn, I am drawn to Miss Betula Lenta (the Cherry Birch tree) and as usual she stands stripped and bare as she is readied for the months in winter. To many, she has lost her beauty and appeal – gone are the chirping birds, gone are her beautiful leaves, gone are the exquisite buds…..however she still stands and teaches lessons that are priceless if only they can be grasped. If only we can but stop, dare to liberate our minds of all the meaningless junk that we have chosen to walk with and just learn, what a world of difference it will make to us as individuals and creatures of purpose. WHAT A CHANGE THAT WILL BE WHEN WE LEARN AND REALIZE THAT WE ARE FOR CREATED FOR PURPOSE!

How much I love these words ….“Let’s tell the truth to people. When people ask, ‘How are you?’ have the nerve sometimes to answer truthfully. You must know, however, that people will start avoiding you because, they, too, have knees that pain them and heads that hurt and they don’t want to know about yours. But think of it this way: If people avoid you, you will have more time to meditate and do fine research on a cure for whatever truly afflicts you.” – Maya Angelou……because humanity is like the ocean and its beauty is not defined by the few dirty drops. Walk with the few that God raises up for you when you are in need, determine not to dwell on the many that avoid you or that ignore you or worse still, the many that utter loads of balderdash and do absolutely nothing. My life, stripped and bare it may seem now is just a phase that is a precursor to the beautiful seasons ahead, and guess what, I am better off each passing day. I choose to continue to give from what I have, and whilst I may not have by the standards of many but I am so enriched each day by countless blessings that I have become attuned to appreciate even as I stand bare and stripped. And I am grateful to be stripped of all what I do not need now for this season, because it is such an awesome time to really acknowledge what I freely receive – from the new friends that prop me up each day to the lives that I can associate with despite their pain and challenges. I am thankful to be stripped of what has so long burdened me so that I can receive anew what truly counts.

I have seen seasons, experienced the lows and the highs and I have come to acknowledge without an iota of doubt that life in essence is simply a journey and each of us has a choice to make regardless of the circumstances we seem to have been thrust into unwillingly and seemingly without preparation. To realize that when we are forsaken by many,  it is yet an opportunity to be accepted by others. To acknowledge that when we are deprived by those that we thought would stand by us, it is yet an opportunity to give of what we have to those who stand alone like us and be cherished by others. To acknowledge that when we are disappointed by many, it is yet an opportunity to be a source of encouragement to another – choosing not to focus on the bleakness but painfully lift our eyes beyond and grasp the beauty of what lies just ahead. Acknowledging that when we can no more do what we used to, it is yet an opportunity to reach deep and pull out the potentials that have hitherto lain dormant within us. I choose to make the most of what I am blessed with daily, taking the taunts and the indifference and turning it inside out to be a stronger and better individual because the journey is one of endurance, perseverance and unrelenting faith in a Father who is able to perfect that which He alone began.

“How far that little candle throws his beams! So shines a good deed in a weary world.” – William Shakespeare

I am ready for the winter!

lמסתדר טוב עד שניפגש שוב בזמן שלו

Adios!

The Way of the Orchid……

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Permit me to say that I have not been as available here as I am wont, not by personal choice but by the weight of events that have suddenly all come together all at once, not excluding the bad bout of flu that I had to wrestle through and overcome. I mean, bring it on! Not to sound blase in my remarks, I say that it has indeed been a wonderful week as usual, characterized by the unpredictability of Myoclonus, I have had my share of good and bad days. Barely had an hour’s sleep in 72 hours and entertained the gawking stares of the unenlightened, the passing on of friends and ‘friends’ and the beauty of meeting unique individuals who in their own little way within those few moments, injected some extra zest to the beauty of my unique personal challenges.

I have learnt to “Be genuinely interested in everyone you meet and everyone you meet will be genuinely interested in you” – R. Ogunlaru and I give special mention to Siham (insha Allah! we’ll meet again), Mary – my own distinct Winnie with her boisterous desire to be by my side as much as possible and my guardian angel who despite the sutures from the operation on her thumb was so reluctant to let me out of her sight. When you give, you receive much more than you have given but for each of you – know that my life would be incomplete without you. And with every passing day that I am blessed to live, I commit to passing on every good deed I receive and burying the bad because hey! the world is already sorrowful enough so why choose to add more when all that is really needed is just that little gesture of kindness to just that one person. Despite the crunching setbacks of huge medical bills, I still choose to enjoy the times I have with my various therapists (Igor, Vas and Richie) because I am convinced that there is always a choice to make and I thank you all for making every new day just a bit more bearable.

Phew! I guess that is what happens when you keep so much bottled up inside that instead of a calculated trickle, there is a gush of all that you had wanted to say but have been unable to.

I love orchids! I recall back in the days, how quickly they could transform an environment both with its fragrance and the beauty of its floral arrangement. And today I still count orchids as one of my favorite flowers, I can still recall plucking off many a flower just to enjoy the sweet nectar contained within.  And then I grew up,……… and fell in love with biology. Now not only did I find a subject that was fun but this was one that allowed me to improve on my drawing (lots of beautiful pictures in the textbooks) but it suddenly explained more of the mysteries that I had come to fruitlessly ponder upon.  Learning about life and the whys have always been a thing for me but I drew the line at going into medicine (it just never appealed to me), now although because of my preferred choice of career, I had to drop biology but it still remains a subject of beauty and allure. I learnt about flowers and got to know more about my favorite orchids.

The orchid can be found in almost every continent but one of the amazing things about is this – because of an absence of an endosperm (sorry this is no biology class), in the course of pollination, it has to enter into a funny relationship with a type of fungi (gross!!!) and guess what? these fungi provide the necessary nutrients needed to germinate so that all species of orchids are reliant upon fungi to complete their life-cycles. Now the irony of this concise biology lesson is to draw an analogy that most of us have to face as individuals – were the orchid to be given an option, I am definite that getting involved with fungi would be the least of her choices however we are all subjects of creation and each of us has a distinct path to walk either by acceptance and choice or by compulsion and a higher authority. As I contemplate the past two years struggling with Myoclonus Dystonia, I realize that certain events in our lives are there to ensure that we walk our distinct paths and fulfill our unique purposes. Now, nobody in his or her right senses would opt for some pain or discomfort but what happens when we are thrust into a maelstrom of events that seem to have the singular objective of crippling us, shaking us and turning our little ideal worlds the wrong way up? Do we throw up our hands and let go of the towel or simply roll over and play possum?

The answer is a choice to make however life has a weird way of bringing out the best of us when we encounter some degree of discomfort, let us recall that we are creations of pleasure for a God who truly loves like nobody ever can.  Would it therefore be right to rile and wave our puny fists in His face when we are borne upon the winds, isolated and alone, tossed to and fro by the waves of life, to be deposited in a strange environment just for the sake of being reborn and reformed? For every orchid flower you see, pause and admire it but remember that there is the process behind it that has resulted in it becoming the epitome of beauty that it is. When we, like seeds are in the dark ground, torn away from the shelter and comfort of the world we were born into or we painstakingly created, devoid of companionship (like we were used to) instead of curling up into a ball and dying – let us appreciate that within and around us a chain of events are already set in motion to sustain us through those dark and dreary moments. The nutrients we need to stay alive are inexhaustible and inexplicably geared towards that purpose, the darkness of those early moments are soon to be pierced though by the warm ray of hope and light. We are seemingly unable to fend off the predators that bear fiercely down upon us, through the myriad of pains, twisted joints, trembling muscles, a neurological system that seems to have gone haywire and it sure seems that we have been wrongly created to suffer for no just course. And yet, we are not wholly consumed, for within our tired bodies and palpitating hearts still flickers life and with life, a hope to be chosen.

It may seem like we are all alone but there is never any vacuum in life if only we can choose to drag our eyes and attention from the claustrophobic dankness around us and acknowledge that as long as we yet live, we can choose to hope and dream because just like the little shoot that breaks through the ground, someday it will all be over and then we can truly realize that not only does death exist in life but more importantly life exists in death. As we die to the many comforts and perks that we had gotten used to, let us also realize that birthing and character development is a process and through the pangs of pain and discomfort, insomnia and the jerks, loss of movement in our limbs and a lack of control over our system – a process is being played out and the end is as certain as the sun rise every day. We are not alone through all this, He is working all things together for our good as long as we are totally reliant on Him. Not the ‘friends’ who have walked away from you in derision or the siblings who have prioritized every other thing above you, not the ones who love only in words and cannot find the actions to back it with, not the birds of carrion who circle in futility above you or the hyenas prowling around – definitely not these, but above and beyond them all is the fact that we are creatures of destiny and our destiny and purpose are charted towards good course as long as you give in totally to the One in charge.

There is nothing wrong with the world and its occupants, filled it may seem with a multitude of uncaring souls, just realize that “All true friendliness begins with fire and food and drink and the recognition of rain or frost. …Each human soul has in a sense to enact for itself the gigantic humility of the Incarnation. Every man must descend into the flesh to meet mankind.” – G.K Chesterton.  We are still part of this world and we can make that difference if we choose to, trusting and completely reliant on the truth that we are no freaks of nature but unique beings created and watched over with love by Him. And as we approach each day, unsure of what it may bring, let us also realize that we can make a difference if we choose to and completely astound the multitude of nonchalant and indifferent witnesses that are eagerly gathered around us because we can and because we understand;  A higher calling, A setting apart, A distinct purpose and mission……

“Live each day as if it’s your last’, that was the conventional advice, but really, who had the energy for that? What if it rained or you felt a bit glandy? It just wasn’t practical. Better by far to simply try and be good and courageous and bold and to make a difference. Not change the world exactly, but the bit around you. Go out there with your passion and your talent and skill and work hard at…something. Change lives through art maybe. Cherish your friends, stay true to your principles, live passionately and fully and well. Experience new things. Love and be loved, if you ever get the chance.” – D. Nicholls.  Arguably, many might ask where the chances are but do well to remember that we do not control the chances but we do control our choices and so endeavor to make those choices count. Live in the knowledge of the truth that life consists of moments and whilst we cannot recreate past moments or create future moments, we can make use of this moment so make the now count and then you can be sure to cherish it even when it is long gone and past.

Remember this “I, not events, have the power to make me happy or unhappy today. I can choose which it shall be. Yesterday is dead, tomorrow hasn’t arrived yet. I have just one day, today, and I’m going to be happy in it.” –  J.H ‘Groucho’ Marx. “Therefore do not worry about tomorrow, for tomorrow will worry about its own things. Sufficient for the day is its own trouble. Matthew 6:34”
lמסתדר טוב עד שניפגש שוב בזמן שלו

Adios!

Family of strangers?….

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In the family, happiness is in the ratio in which each is serving the others, seeking one another’s good, and bearing one another’s burdens.” – H.W Beecher

Today, I met Angela at the bus stop and summer is finally over (what a beauty the weather is…). Angela responded to my ‘hi’ and despite the drizzle, we both agreed that it was such a wonderful weather. Noticing my tremors and my staff of authority, she enquired more and having never heard of Movement disorders or Dystonia, I was pleasant enough to show her my health card which explains Myoclonus and describes the symptoms (saves me from having to do much talking) and in addition, states my medication. Quite a handy card, I will say. Being a little bit distraught with what she read and observed, she kindly helped me into the bus 29 and shared my seat, peppering me with questions borne with loads of sincere care and concern. A grandmother of Irish descent, she encouraged me to visit Ireland someday and complemented my sense of humour and cheer despite the ominous words that describe my condition, before getting off a couple of stops later. With an extra boost to my spirit, I continued onwards to my medical consultation acknowledging that I can never be alone no matter how bleak the days may seem. I have got a family in over seven billion people.

As a little kid, one of the phrases continuously drummed into my ears and passed on from generation to generation is ‘Do not talk to strangers!’ and as the years fell away and maturity set in, there inevitably followed a change in perspective and a greater appreciation of these childhood phrases and the appropriate application of wisdom and understanding. I recall vividly the story of the Good Samaritan that back in the days was as good a bedtime story as any and the underlying meaning behind the story: good neighbors (family) are those who help when you are in need and in the words of Archbishop Desmond Tutu “You don’t choose your family. They are  God’s gift to you, as you are to them’. Now I have truly come round in my little circle of life to appreciate the depths of these words, family is not defined solely by blood but by a genuine expression of concern and affection and an unquenchable desire to help alleviate another’s burdens – that is what makes family. And as I plod through life, I am blessed to meet family in every race, of every age, tongue, religion. Hey! we all have one origin and One Father and so regardless of the inactions of a few, how doth that measure against the over 7 billion that populate the earth?

I love almond nuts, cannot seem to truly encompass the beauty of those little nuts but I sure do love them. On thursday, I met Dee for the first time, all the way from the States, my first meeting with a stranger who had heard of me and had determined to squeeze out some time during her hols with her large family to say hello. Knowing of my love for almond nuts, she had walked into a departmental store in the States, purchased that bag of almond nuts and travelled with it all the way just for me. What an enjoyable period of time we spent, talking about my challenges, the current medical procedures, life, hope and above all, the faith that so unerringly defines and dictates my life. Now many would say, what is a pack of almond nuts compared to my regular weekly medical expense of £150 at the very least (excluding consultations), and my response would be that life is not all about money. Without the thought, there can be no giving and the pack of almond nuts was and is a clear case of giving. Dee, in those few hours, alleviated my burdens with her light hearted chats and lovable personality. Affection, care and concern are not resources that have a price tag, it is an expression of true familial ties, one borne from choice and not dictated by ‘tell me if you need something and I will be family to you’.

I opted to attend my high school alumni meeting on Saturday because of Dee. Having made a hash of my directions, I paused to get some rest from my severely aching back and tired legs (just to mention a few) and then across came Ian as he hurried along ostensibly to meet up with a pre-arranged meeting. Stopping by, he enquired if I was ok and in response to my stuttered need for directions, he pulled out his iPad phone, dropped his duffel bag, typed in my destination and then pointed me on my way (my destination was just two apartments away). “No worries,mate” was his parting words to me as he retrieved his duffel bag and watched me head in the right direction. As I contemplated on the kindness of a stranger, these words hit me “I don’t care about whose DNA has recombined with whose. When everything goes to hell, the people who stand by you without flinching — they are your family.– Jim Butcher

A couple of days back, I just had to do some errands – (I live alone) and help does not always come when you want it but things have to be done. A letter to post, a return to be made at ASDA and because of my mobility requirements, I just have to take a break now and then or face the inevitable consequences of tremors etc. I stopped by at Precious Moments to pawn my ring and also grab a chair and then I met Goli, beautifully wrapped in her hijab and ordering a pendant for her daughter. Devoutly muslim and a mother of four kids, she asked what she could do to make my respite better and enquired about my super hero outfit, yet again out came my card and with a ‘La il laha il Allah, Muhammad a rasool Allah.’, she fussed over me and after I explained where my hope, faith and strength came from even in the seemingly bleak situation – there is but one God and for every season, I trust Him to lead me in line with the reason, she gave it some thought and then delved deep into her purse, extracted a ‘prayer’ and handed over to me. Bading me well, she concluded her business and I was astounded by her public, unpretentious display of care and concern. “Strangers are just family you have yet to come to know.” – Mitch Albom

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As I receive countless opportunities of meeting various people, i count it a privilege not just to share my faith, my convictions, my hope but also to realise that I am never alone. Surrounded on all sides by strangers, I can now say that “The bond that links your true family is not one of blood, but of respect and joy in each other’s life. Rarely do members of one family grow up under the same roof.” – Richard Bach.We are all blessed with so much to give and yet we choose to be so constrained by our self centredness, not realising that as we walk through life, we all have the opportunity to truly understand what a family of strangers that encompass us daily. And there can be no words that can ever eclipse the actions of our hands. I look around and am amazed at the mass of dead seas that persistently choose to receive and receive and receive, choosing to deny the beauty of blessings that amount to us if only we can but give from the little or the much that we are daily blessed with. For there is but one truth, and no amount of denial will upturn it – how blessed are they that give, for it is in giving that we truly express but a fraction of the love that we continuously receive from God above.

I can recall the conversation I had with my sibling several months back, when he so vociferously attempted to make me understand that the few friends that have stayed with me will someday disappear and I will realise that family is what counts (whether they act as such or not). Now in retrospect, I realise that the circumstances we find ourselves shape us to become better, stronger and wiser and so like Scarlet O’Hara, all resentment is gone with the wind because I not only know that some friends stick closer than brothers but that family is neither something we choose or is it only defined by blood but also sometimes and in some circumstances“Friends are God’s way of apologizing for your family.” – W.W Dyer (quite a quip, isn’t it?). The truth is that when we truly love another and unashamedly express it, then we truly embrace the beauty of family and realise with sudden clarity that we are surrounded on all sides by a family of strangers. All we can and should do, irrespective of your circumstance is stretch out a hand and help raise another up because all around us are countless hordes who are definitely unconcerned about how much we know until they know how much we care and then we can begin to change the world by spreading God’s love, one person at a time.

For the many like me, who are passing through such challenging times struggling with dystonia and movement disorders, realise that we each have a family of strangers who unceasingly pass through our lives for times such as these and whilst we are seemingly compelled to succumb to the whirlpool of despondency and depression, we can choose to stand tall and make a difference whilst we yet stand. “Let us make one point, that we meet each other with a smile, when it is difficult to smile. Smile at each other, make time for each other in your family.” – Mother Theresa

Remember what a miserable tale ours would be if we choose to just exist rather than live purposefully.

lמסתדר טוב עד שניפגש שוב בזמן שלו

Adios!